Five years into the pandemic access to treatment for Long Covid is limited as interest in Covid decreases.
#COVID #LongCovid https://www.theatlantic.com/health/archive/2025/04/long-covid-clinics-closing/682251/?utm_campaign=the-atlantic&utm_content=true-anthem&utm_medium=social&utm_source=twitter
Ähnliches journalistisches Gaslighting ist ja auch bei Covid und #Longcovid zu beobachten, sowie bei der #Klimakatastrophe. Es folgt einem bestimmten Muster, nämlich einem rechtsreaktionären Mindset, wobei sich offenbart, wie sehr die Medien damit bereits durchsetzt sind.
Ebenso "unerklärlich" ist die übrigens auch die schlagartig aufgetretene ausgeprägte Aortensklerose... 
Ja, ich vermute stark, dass #Hashimoto zu meinen anderen #LongCovid -Symptomen noch hinzukommt. Seitens Hausärztin ernte ich diesbezüglich allerdings nur Gaslighting, obwohl ich schon zuvor wg Unterfunktion in Behandlung, und eigentlich mit L-Thyroxin gut eingestellt war. Seit der Covid-Infektion vor 4 Jahren laufen die Schilddrüsen-Werte, und mein Gewicht, allerdings aus "unerklärlichen" Gründen total aus dem Ruder 
@DenisCOVIDinfoguy they also cite https://pubmed.ncbi.nlm.nih.gov/35810238/
which has this absolute adjective of a hypothesis:
SARS-CoV-2 may bind to ACE2 in order to enter the host brainstem cell and change baroreflex sensitivity
because
The integral parts of the brain renin-angiotensin system, as ACE2 enzyme, are highly expressed in the brainstem, which may also be involved in baroreflex sensitivity, playing an important role in HRV.
which would help explain POTS!!
@DenisCOVIDinfoguy I was just reading this!
https://www.nature.com/articles/s41598-024-82411-w has tidbits that range from interesting to wow
non-hospitalized individuals who had COVID-19 present a decrease in heart rate variability with a predominance of the sympathetic nervous system; (2) above all, those evaluated early in the first weeks after infection have less parasympathetic modulation; (3) moderate to large effect sizes were found when comparing groups; (4) the time after diagnosis influences positively while age is negatively associated with HRV parameters
and in a bit of detail:
the LF band, which reflects both modulations but with greater sympathetic predominance, showed a significant increase in the evaluated group during the first weeks after infection, with a tendency to decrease over time. In contrast, the HF band, which reflects parasympathetic activity, exhibited a significant reduction in those evaluated early, indicating diminished parasympathetic activity. However, no increase in this variable was observed over time.
which they immediately explain:
This behavior can be attributed to the different recovery dynamics of the sympathetic and parasympathetic nervous systems after stressors like infection. Sympathetic modulation tends to normalize more quickly following the acute stress response, whereas parasympathetic modulation requires more time to recover, especially after inflammatory states. Additionally, COVID-19 induces vagal suppression, which reduces parasympathetic activity and prolongs its recovery period
vagal refers to the vagus nerve folks, stay calm
USA: ‘Shrinking my world really small’: How New Yorkers are coping with long COVID.
"One of the most common reported symptoms is chronic, debilitating fatigue. That’s often paired with a punishing condition known as post-exertional malaise — a crash that comes after too much mental or physical activity."
Apparently, I need to order my repeat meds "at least 5 (working?) days before they are due." The GP needs 48 hours to do their bit and then the pharmacy need 48 hours to do theirs.
Fine.
But if I order 8 (calendar) days in advance, that's too early, and they won't pass it to the pharmacy until the day I should start taking them.
To avoid stockpiling.
So I'm now thinking about how to create a stockpile.
To avoid withdrawal.
Beim #RundenTisch #LongCovid geht es heute um die #OffLabel Therapie-Empfehlungen. Warum alles so lange dauert (die Medikamenten-Liste sollte Ende 2023 vorliegen!) ist eine haarsträubende Geschichte, die ich für @riffreporter hier recherchiert habe: https://www.riffreporter.de/de/wissen/long-covid-off-label-therapie-mecfs-kommission-lauterbach-krankenkasse
University of Waterloo students raise awareness about Long COVID – CTVNews
https://www.ctvnews.ca/kitchener/article/university-of-waterloo-students-raise-awareness-about-long-covid/
#uwaterloo #waterlooregion #LongCovid
Hey! Are you in the USA? Do you (or someone you know) have any of:
which started or worsened after a bout of acute COVID-19?
Trials are open for treatments for these symptoms!
Those interested in participating in the trials can contact the clinic for screening to see if they are eligible. The team can be reached via email at covidtrialsuva@uvahealth.org, or by phone at 434-243-4008 or toll-free at 855-882-5334.
and they seem like good folks:
“We see patients coming in who are frustrated because they look fairly normal, but they cannot fully function and are not being believed,” she said. “So, for those people, I want to say this is truly a disease and you are not imagining anything.”
While UVA is in Virginia the article suggests it is a USA-wide national study.
https://news.virginia.edu/content/uva-health-takes-aim-long-covid-two-national-clinical-trials
2/
"we confirmed our hypothesis that non-hospitalized individuals who had COVID-19 present a decrease in HRV with a predominance of the sympathetic nervous system"
#LongCovid #PASC
@longcovid @covid19 @novid@chirp.social @novid@a.gup.pe @auscovid19
Note to me; just because you're having a good couple of days doesn't mean you no longer have #LongCovid.
Rest.
Anyone protesting on #April5 or #TeslaTakedowns, or any other action, please #WearARespirator. We don’t need any more comrades getting #LongCovid, because #CovidIsNotOver. Please and thank you.
I just had a guy get angry at me for saying we’re still in a pandemic. He said it was fear mongering and “silly” to continue to take precautions.
He then went on to say his wife has Long Covid and he’s had Covid “at least 4-5 times”.
This attitude is why we’re in this mess. His own wife was disabled by Covid, and rather than adapt his behaviour he’s exposed her 4-5 additional times.
Repeat infections are devastating to those with Long Covid. Not to mention each infection does cumulative damage, and eventually you will be left disabled.
Even if you’re someone who believes it’s “just a flu”… surely you recognize people didn’t get the flu 4-5 times in a four year period? Being sick that often is an aberration, and a darn good reason to take precautions.
You know who hasn’t had COVID 4-5 times? People who are taking precautions.
Bonus tip: If you’re masking and you become infected anyways, you’ve reduced your viral load AND you’ve made sure not to infect anyone else. That’s community care & compassion and it’s worth doing.
De Washington Post benadrukt dat elke infectie leidt tot vermindering van de hersenfunctie. Na #Covid ervaren mensen #Brainfog, doen het minder goed op cognitieve taken, en verandert de hersenstructuur zichtbaar hersenscans.
Twee meta-analyses (onderzoek waarin andere onderzoeken worden gecombineerd) laten zien dat elke infectie met #SARSCov2 het risico op #Dementie verhoogt.
https://locovid.nl/oversterfte-ziekte-en-verspreiding-covid19-2025-11-2/
@broadwaybabyto Hell, even if someone wants to wear a mask to avoid pollen (due to hayfever) that should be okay!
And it should definitely be okay to wear a mask to avoid a virus! (flu, Covid, etc)
No. Mask. Bans. Ever!
“We’ve been conditioned by society that pain is weakness. That being sick is something you can overcome by simply trying harder.”
You can’t “try harder” your way out of disability. It’s not a weakness or a moral failing.
It is one of the only minority groups you can join at any time.
Ableism forces us to hide our suffering. To smile through the pain and deliver a convincing “I’m fine”
My latest looks at what would happen if we stopped hiding, as well as ways you can support the disabled person in your life.
https://www.disabledginger.com/p/why-are-chronically-ill-people-forced
