Help us send out a strong SOS message on May 12th, International ME/CFS Awareness Day
This video from Laurie Jones, executive director of #MEAction, invites you to join our protest in Washington, DC, or online
Please join us - we need as many folks as possible!
More details here:
https://www.meactions.org/millionsmissing2025
Thank you! 
(see replies for full text of the video)
On May 12, International ME Awareness Day, #MEAction will be sending out an SOS for ME/CFS and Long Covid
SOS = Save our support systems. Save our science. Save our society.
A protest will be held at the Capitol in Washington, DC, and folks can also join in from home
#MEAction encourages all folks with disabilities to join!
More details / toolkits here:
https://www.meactions.org/millionsmissing2025
Please boost!
I ran out of room but I want to add here that there's a global toolkit with ideas for folks outside the USA:
https://docs.google.com/document/d/1kgu8uA6pxxGaIN8UBRX9rgC6Z4deom9gredqsBNDngI/edit?tab=t.0
I encourage patients and allies who are feeling discouraged to join the Millions Missing 2025 campaign:
https://www.meactions.org/millionsmissing2025
The SOS theme = "Save our support systems. Save our science. Save our society."
The main event is a protest on May 12 in Washington, DC. There'll be smaller events across the US. Or schedule a meeting with your local congress rep
Can't attend in person? Join in online on May 12
See the link for more ideas
#MillionsMissing 2025: Sending Out An SOS
Reminder: Two planning meetings for #MEAction Millions Missing 2025 (for ME/CFS Awareness Day - May 12) are scheduled for tomorrow!
https://www.meaction.net/2025/04/08/why-were-sending-out-an-sos-this-millionsmissing/
Here's how to sign up
Meeting 1: Thursday, April 10, 12 pm Pacific, 3 pm Eastern
https://us06web.zoom.us/meeting/register/EHwZzzubSpqIi31vM1VRNQ#/registration
Meeting 2: Thursday, April 10, 3 pm Pacific / 6 pm Eastern
https://us06web.zoom.us/meeting/register/2hriH4c1RU6VbSGbEBrjHA#/registration
